Learn about hereditary high cholesterol

About 1 in 50 people with high cholesterol are born with Familial Hypercholesterolemia (FH), a hereditary disorder which can impact you and your family.

  • What's Cholesterol
  • What's FH
  • Why Get Tested
  • Useful Resources
  • Buy Color -
  • What is cholesterol?

    Cholesterol is a fat-like substance found in every cell in your body. There are two main types:

    LDL (or “bad cholesterol”) can clog your arteries and prevent blood from flowing to and from your heart.

    HDL (or “good cholesterol”) removes excess cholesterol from your blood.

    Too much LDL can cause coronary heart disease, which can lead to a heart attack or stroke.

    Most cases of high cholesterol are caused by lifestyle choices, but some are due to genetics

    Unhealthy diet

    Being overweight

    Smoking and drinking

    Your genetics

    FH is a hereditary disorder that causes very high cholesterol levels from an early age

    If you have FH, your liver is unable to remove enough LDL, or bad cholesterol, from your blood. This means your LDL level remains high, despite positive lifestyle choices.

    FH makes you more likely to get coronary heart disease

    Having FH means you’re exposed to high cholesterol from an early age, which make you 22 times more likely to develop coronary heart disease than are those with normal cholesterol and no FH.

    FH can be managed successfully

    Your healthcare provider might recommend medication to remove some of the bad cholesterol from your body, along with changes to your diet and lifestyle to protect your heart.

    FH is passed down through families

    Your results can be informative for your relatives of either gender. If you have FH, there’s a 50% chance that each of your children, siblings, and parents will also have FH. Early identification and treatment can help reduce the risk of coronary heart disease.

    Color can help you learn your risk for FH

    Color’s Hereditary High Cholesterol Test analyzes 3 genes currently known to cause most FH cases and can increase your risk for coronary heart disease.

    Learn about the genes analyzed:*

    Get Started

    *APOB: exon 1 is not analyzed. LDLR: in the promoter region, the detection of deletions, duplications, and complex structural rearrangements may be limited.

    This test is most appropriate for those who have high cholesterol.

    Most people (though not all) with FH have high cholesterol. More than 90% of people with FH don't know they have the disorder.

    Testing negative for FH is valuable information

    If a relative carries a genetic mutation that causes FH and your results indicate that you don’t have the same mutation, you can be confident that you didn’t inherit it. Healthcare providers refer to this result as a "true negative," because it indicates that you haven’t inherited the same mutation that is associated with FH in your relatives.

    Even if your relatives don’t have an identified mutation, testing negative for mutations on Color's Hereditary High Cholesterol Test may indicate that you have a reduced chance of having a hereditary predisposition to high cholesterol.

    We recommend that you investigate your family history to learn if anyone has FH or has had genetic testing for FH.

    What can I do if I have FH?

    Speak with Color’s board-certified genetic counselor
    Talk with a genetic counselor to discuss what having FH means for you and your loved ones. They can provide suggestions on how to discuss FH with your healthcare provider and family.

    Share results with your healthcare provider
    FH can be managed successfully. Your healthcare providers can help you develop the most appropriate treatment plan for managing FH and reducing your cholesterol levels.

    Consider sharing results with your family
    If you have FH, there’s a 50% chance that your children, siblings, and parents also have it. Discussing FH with your family can help them identify their own risks sooner and take action, if appropriate.

    Useful resources

    The FH Foundation

    The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of FH.

    Visit thefhfoundation.org ›

    National Heart, Lung, and Blood Institute

    Provides leadership for a research, training and education program to promote the prevention and treatment of heart, lung, and blood diseases.

    Visit nhlbi.nih.gov ›

    American Heart Association

    Focused on building healthier lives free of heart disease by promoting heart healthy lifestyle choices, providing accessible education, and funding innovative research.

    Visit heart.org ›